When I checked tracking, it said my package from Amazon had been delivered. Great! I hadn’t eaten breakfast yet so I would have a shake. Opening the front door, I saw the FedEx person had plunked the package on the floor of the deck right at the steps. The UPS man puts them on the chair so there’s no problem picking them up. Of course, I had to bend to get the package and, of course, I coughed.
There were two different supplements in the box along with the Ayr so I chose the one that had fruit and greens. I mixed it with 10 ozzies cashew milk and since what I tasted from the blender lid was very sweet, I went to the pantry and got a can of coconut milk. Putting a generous tablespoon of it in, I blended again and poured it into a glass.
Now, I have a sweet tooth but whoever concocted that mixture must have a giant one. Talk about sweet!! It took me well over an hour to choke it down. I’m going to have to blend green bananas or something with it to make it palatable. The one I’ll try tomorrow has a neutral taste so maybe I can tolerate it.
When the doorbell rang, it took me completely by surprise. I thought maybe it was another delivery since I have more coming. Opening the door, there was my CIL. He had a bag in his hand and when he handed it to me, here’s what I found:
Cuz had told me about her eggplant yesterday and asked me if I liked them. I told her yes and here one was! She’d sent me ‘way too much squash again but I will valiantly try to fix it and eat it this time.
My CIL said Cuz needed me to print the ad for ALDI. I’ve got her price matching. I pulled it up and printed it off. When I was sure it was on the printer, I sent my CIL in to get it. He thanked me, I thanked him and he left.
When the phone rang this afternoon, the handset closest to me was dead. I really need to remember to get Cuz or somebody to change the batteries out in all three. Thankfully, the caller left voice mail. It was the therapist from Pulmonary Rehab. She will be out all next week so she’ll call me on the 11th to set up an appointment for an eval.
She asked me if I knew if my insurance would cover it. I told her yes, that it would have to be pre-approved but they would. She guessed I didn’t know what the coverage was. Well, yes. For three visits a week (which is what the doctor has ordered), it will be $150 — $50 co-pay a visit. She was shocked. From what she told me, insurances usually approve 36 visits. I figured it up. Out of pocket would be $1800. We’ll play it by ear.
While we were talking, the shake kicked my reflux into high gear and I coughed a lot. I tried to control it but there’s no way to when it does what it wants to do.
I’d decided on how I was going to fix the eggplant and squash when the phone rang. It was the head deaconess from church. We talked for a while, just catching up, and then she asked me if there were anything the deaconesses could do for me. Did I need food brought in? No, I have food. What about cleaning? I told her Cuz vacuums periodically, takes out the trash and compost and picks up. Well, would I want them to come in and clean? What a Godsend!! Cuz had talked to me yesterday about her nephew and his wife cleaning but I can’t remember ever meeting them. Anyway, before we hung up over half an hour later, she said she’d talk to the others and set up a schedule for someone to come in once a week. I feel like I should be doing the cleaning but when I try, I end up worse off than before.
My supper turned out to be refried beans, avocado and sliced olives with blue corn chips. I’m going to have to fix some of my own refried beans. What comes in a can just doesn’t get it even if they ARE organic and vegan. I like salt but these were too salty for me. That’s saying a lot.
Last night, I mentioned the NP talking to me about end of life matters and my sister wondered what the doctor would think. He probably leaves that to her since he’s matter-of-fact and she’s more nurturing. Actually, she didn’t say anything I didn’t already know and I’ve been saying it all along. As it stands, my condition is terminal. The only known “cure” for it is a lung transplant.
When I’ve gone into the hospital the last two times, I signed a DNR (Do Not Resuscitate) order. My advance directive and durable power of attorney have been part of my medical record for years. As for her telling me to do what I feel is best for me, that seems to be part and parcel of the NP philosophy. She isn’t the first one to tell me that. While I know I can refuse anything a any time, there are people who think the doctor is calling the shots no matter what. They don’t know they are in charge. Some don’t even know they can ask questions. I shocked my father-in-law by asking his doctor about his care when I took him in for a lens implant.
The doctor told me I knew about as much as anyone about IPF and it’s probably true. I’ve delved into anything and everything I could find. I know there are two medications that could possibly delay the progression of the scarring but they are outrageously expensive and both have horrible side effects. I’ve investigated “treatments” and was willing to bankrupt myself to have stem cell therapy only to be told by more than one doctor that the for-profit places that are doing it are in it for the money. That won’t stop me from asking the doctors at Vanderbilt about it, though. 🙂
My nurse friend and I haven’t been able to coordinate this week. I had my appointment on Monday. She had to take her grandson for dental work on Tuesday. Wednesday, she had to take him back because of complications. We decided to skip this week and shoot me next week. I’m sure I won’t die any sooner because of it.
I opened less06m and looked at it. That’s as far as I got. I’ve fed and petted Catz twice today. Black Tom’s hair is growing back nicely and I got a burr out of his tail. Some of the others had burrs, too. I guess it’s that time of year.